More UNIPAC Questions Answered
May 11th
This is the second of three posts by UNIPAC series editor Porter Storey, MD FACP FAAHPM, in which he discusses the new UNIPAC series, including the amplifire™ online confidence-based learning modules, and addresses commonly asked questions.
At the AAHPM Annual Assembly, I was asked several good questions about the new UNIPAC Series 4th edition. Perhaps this information will help inform your purchasing decisions.
- Is there more information in the 4th edition than the 3rd?
a. Older, less-relevant material was replaced with new developments, and while an effort was made to keep them succinct, some books, like the Pediatric UNIPAC grew by nearly 50%.
b. Every effort was made to include systematic reviews and consensus statements to help the reader interpret the vast amount of new material being published in our field. - Has the 4th Edition really been updated? Is it evidence-based?
a. This edition includes 2551 references and over 600 of these are from 2010-2012.
b. You will find material from the NHPCO Facts and Figures 2011 edition and the new American College of Physicians Ethics Manual published in 2012, among many other new sources.
Porter Storey MD FACP FAAHPM
Executive VP, AAHPM
Colorado Permanente Medical Group
Boulder, CO
UNIPAC 4th edition available for purchase.
UNIPAC 4th edition Now Available
May 4th
This is the first of three posts by UNIPAC series editor Porter Storey, MD FACP FAAHPM, in which he discusses the new UNIPAC series, including the amplifire™ online confidence-based learning modules, and addresses commonly asked questions.
At the AAHPM Annual Assembly, I was asked several good questions about the new UNIPAC Series 4th edition. Perhaps this information will help inform your purchasing decisions.
1. Is the 4th Edition of the UNIPAC Series really any different that the 3rd edition?
a. Every UNIPAC was carefully revised and some (like Ethics and Pain) were completely re-written. New and extensively updated topics include:
i. the controversies around opioid contracts,
ii. the latest Catholic Ethical and Religious Directives,
iii. parental requests to withhold information from dying children,
iv. comprehensive assessment of fatigue and anorexia-cachexia,
v. management of co-infection of hepatitis C & HIV,
vi. the importance of legal decisions in the Barber, Saikewics, and Bouvia cases on withdrawing tube-feedings,
vii. treatment of agitation in dementia patients,
viii. the roles of opioids, pulmonary rehabilitation, and non-invasive ventilation in the treatment of dyspnea in patients with end-stage COPD,
ix. and many others.
b. Several of the UNIPACs have new authors who are leaders in our field (e.g. Russell Portenoy) and they were all reviewed by acknowledged experts (e.g. Timothy Quill).
Porter Storey MD FACP FAAHPM
Executive VP, AAHPM
Colorado Permanente Medical Group
Boulder, CO
UNIPAC 4th edition now available for purchase.
AAHPM Quarterly Article Highlights Job Satisfaction in HPM
Apr 2nd
by Larry Beresford
Most hospice and palliative medicine (HPM) professionals have been asked, “How can you do this work? Isn’t it depressing?” Depressing, some folks assume, because so many of the patients die, even though it is often expected. And yet, the experiences of those in the field is, in many cases, just the opposite—many professionals in the field report feeling uplifted, gratified, and hopeful because of the difference they are able to make in the lives of patients and families. An article in the AAHPM Quarterly summarizes data from the Academy’s Physician Compensation and Benefits Survey—2010 Report, other recent research, and the personal experience of HPM physicians to conclude that this work can be extraordinarily satisfying.
As a hospice volunteer over much of the past three decades, I can confirm the personal satisfaction that comes from making a tangible contribution to patients’ quality of life at a critical time of life. But physicians working in HPM may have additional benefits and job satisfaction from the varied opportunities for team leadership, program development, teaching, and research. AAHPM’s survey documents the wide variety of roles, settings, and job titles encompassed by the field of hospice and palliative medicine.
Another resource that has compiled the personal and professional stories of 17 physicians working in hospice and palliative medicine is the HPM Practitioner, an online newsletter published by the DAI Consulting Group. Brought to the field by a wide variety of paths and interests, these committed HPM physicians detail a range of job titles, duties, and responsibilities. But in most cases, they say they can’t imagine doing anything else than their current work in this field.
Larry Beresford is a freelance medical writer from Oakland, CA, who specializes in hospice and palliative care issues.
Dual Diagnosis, aka Substance Abuse, Mental Illness, and Palliative Care
Mar 11th
It seems innocuous, but the term ‘dual diagnosis’ describes a very complicated subset of patients — those who have a substance use disorder as well as a primary psychiatric disorder (anything from depression to schizophrenia). Throw a serious medical illness into the mix, and you have a recipe for one very overwhelmed palliative care physician.
Moving along, I’ve paraphrased key info from the case that was presented –
- Presenters describing patient: “Opiate dependence, stopped methadone maintenance therapy, mood disorder, trauma history, cocaine, family estrangement, new cancer diagnosis.
- Most of room: “This doesn’t sound good…”
- Presenters: “Now she’s your patient and you’ve been noticing she’s missed a lot of appointments with you and her oncologist, she’s had a number of early pain med refills due to lost scripts and stolen meds, and she’s still having a lot of pain despite very high opioid doses. She refuses to switch over to methadone because she doesn’t like the side effects. Now what?”
- Most of room: “Refer patient to someone else!”
Driving Miss Daisy
Mar 10th
You’ve all been there – the elderly couple shuffles into your office, peering through oversize glasses, slightly disoriented but helping each other out. Did you ever stop to think how they got to your office? They almost certainly drove – but should they? Shouldn’t it be their children’s job to tell them to stop?? Focus groups have shown that it’s the physician they look to for guidance (sigh).
Luckily, there are excellent resources to guide you in evaluating driving impairment and to let you know what the laws are in your state. Google “AMA older driver safety” for a wealth of information. It’s free and you don’t have to be an AMA member to access it. There are even disease-specific recommendations from areas as diverse as ophthalmology, cardiology, and neurology. The AMA also has an ethical opinion on impaired drivers and charges the physician with recommending driving restrictions and, if needed, reporting impaired drivers to the Department of Motor Vehicles (DMV).
Dr. Karen Cross recommends a 6-step approach. (1) Identify patients at risk of impaired driving; (2) find out if the patient is still driving; (3) assess their driving skills; (4) make recommendations with referral for a driving evaluation – try www.aded.net for resources; (5) counsel the patient about transportation alternatives; and (6) if all else fails, report the driver to the DMV.
A little more on identifying patients at risk of impaired driving. Driving requires vision, both peripheral and focal. It requires physical activity – from opening the car door to moving one’s foot from the gas to the brake. Reaction time is also important, along with memory and the ability to concentrate, especially when distracted. Many of these skills can be evaluated in the office or home setting. A driving evaluation may be useful when there is conflict over the patient’s abilities. Unfortunately, these are not covered by Medicare or most insurers and can be expensive.
Restricting a patient’s driving can be life altering, resulting in depression, social isolation, and impaired self-esteem. There’s even an increased risk of long-term-care placement if an elderly person can no longer drive to meet their daily needs. On the other hand, there is the risk of injury to themselves or others. It is a physician’s responsibility to make the tough call and recommend driving restrictions when they are needed. Remember to check the AMA website for state-specific tools to support your recommendations.
Safe driving!
The Why, How , What and “So What” of developing Clinical Informatics Tools
Mar 10th
This am has been an interesting juxtaposition of following twitter during the state of the science, and being reminded of the power of a graciously led small group meeting.
I would not qualify myself as a skeptic, but more as a user without training in the multiple areas for which a Clinical informatics system can be adapted to improve our care, And having recently been faced with the common problem of being told the system at my new institution will take months to change, I was hopeful for new quick tools.
Joy Goebel, Kelly Chong, Sangeeta Ahluwalia and Karl Lorenz gave an organized presentation of the issues involved in the why, how what and so what of Clinical info tools.
We were reminded these tools and systems are very early in development and that the technology will progress even as we work to develop tools.
We were reminded of the need to work with stakeholders and end users to develop clinical information tools, and if the application of Implementation Science (a term I had not heard before).
Greater La VA system has a consult tool, but not other notes yet, and is just beginning to generate reports. They seem to have a great and very multidisciplinary development group, and I they may create national VA templates and reports that others can review. It had nice features like embedded tools like the PPS and embedded references which would be great for multiple users to help standardize documents.
There were many good questions asked about limitations, and I realize that the issue still returns to understanding my system and what its benefits and limits are. Any other Cerner users with templates for notes or ideas about how to highlight goals of care info in the large volume of documents generated?
I learned much from blogging, as it caused me to think and listen more critically. Thanks to the academy for the opportunity.
Diane Dietzen, MD Baystate Medical Center
Communication as a dance
Mar 9th
Ok -so it only took me 40 min to post the first one so this posting will get better.
This session was about motivational interviewing and was led by Julie Childers and Bob Arnold. We were very interactive and engaged and it was very heartwarming to see a large roomful of colleagues who have really good communication skills but want to think critically about how to get better. One of the things this meeting regularly provides is that warming of the heart.
Specifics:
Techniques- we reviewed standard interviewing to prescribe change, and the spirit of motivational interviewing: curiosity, respect for autonomy, patient as expert, physician as consultant, collaboration and empathy. The OARS of motivation interviewing were described: O- open ended questions, A-Affirmations R –reflections and summaries.
The difference between following up with a question, or following up with a reflection was stressed .The reflection can add a little more of your assumption about what was said, and can advance the conversation, so it is a good technique to understand.
And then we practiced, and by reflecting had a really insightful discussion of creative outlets and how they relate to palliative care practice in a small group in a very short time.
I do agree with the comment made in the session that reflecting creates more vulnerability for you as an interviewer, but also for the patient. In practice the art is as always to balance reflection with questions or summaries, or silence.
In the discussion, issues of “agenda “and right and wrong” in meetings with patients and families and concerns were described. I think all of us have thought about and about the idea that in palliative care there is no right answer for a given patient or family , there are their answers which we may not agree with. If we find continued disagreement our job should be to find out why the patient/family is choosing the option they are and provide support.
Again valuable to add another frame to think about how we communicate, and how to teach this to others.
palliative care and wellness
Mar 9th
Newly inspired by Christian Sinclair’s presentation I am happy I challenged myself to be a blogger at this meeting.
I certainly agree that the title “An unlikely union- Palliative Care and Wellness “seems apt, and quite intriguing. And at a session I attended yesterday the emphasis was on integrating palliative care, and so I was eager to learn how the framework of wellness care might fit.
Cobie Whitten, Becca Hawkins and Gregg VandeKieft did a great job of providing a framework for the discussion reviewing a little about chronic illness care, cancer survivorship, and models for care. The discussion was very lively
Themes:
The language- there was much talk about the connotations of palliative care and wellness, and the hope that associating the two would further the overall discussion about quality of life. This despite the still difficult connotations of palliative care for some providers.
The need to address the cancer survivor population comprehensively and provide ongoing support- extending way beyond treatment. This likely involves better education of primary care providers about medical issues in follow-up but also other supports. Palliative Care providers can participate in developing this education.Creating a specific post treatment plan for education also seemed a good way to help convey this information to other providers caring for the cancer survivor.
We need to create these models for other populations like dialysis patients with models similar to many cancer centers and for the chronically ill in general. Other sessions here have addressed models for this type of ongoing wellness care.
The importance of rehab and nutrition in wellness, a point I have recently come to recognize in my palliative care practice.
What can I do to use this information? Colleagues at my new place of employment have shared with me their thought about an outpatient wellness center that includes palliative Care, but at present that is only one of those grand ideas. That is a grand 10 year plan. Perhaps sooner I can investigate with my cancer center colleagues and nephrologists wellness follow- up for their patients, and how primary care is involved.
So is this grand ides thought provoking for others – or have you had so many thought provoking new ideas in the last 24 hours that this still seems” unlikely”?
I will try to remain focused on more discussion of this, even with the 50 ideas I will add to my to do list next week.
Diane Dietzen, MD Palliative Medicine Physician, Baystate health, Springfield, MA
Chemo in the last 2 weeks of life
Mar 9th
Chemotherapy is a two-edged sword. As an oncology trainee I’ve seen a few patients die solely because of it. And yet aggressive treatment is sometimes necessary to save a life; in the right settings it often succeeds. Patients with Hodgkins’ disease, testicular cancer, acute leukemias, and early stage colon, lung, or breast cancers, among others, are often cured because of chemotherapy and other aggressive treatments. Like any useful tool though, it must be properly applied in order to be effective and avoid harm. You wouldn’t use a screwdriver to drive a nail; similarly, chemotherapy shouldn’t be given to all patients in all situations, nor should it be a substitute for good discussions about goals of care and the likelihood of deriving benefit.
Yesterday’s cancer SIG presentation cut to the core of many issues that create tension between oncologists and palliative care clinicians. Most of us have probably seen difficult situations involving chemotherapy; it can be very upsetting! We tend to point the finger at oncologists when things go wrong, but we must recognize their unique perspective. To paraphrase one of today’s presenters, “Sometimes I can give a patient 5 different rounds of chemotherapy over 7 years and see them respond well each time.” In other words, chemo often really helps patients, even when its intent is palliative. I promise, we’re not monsters….oncologists are people too!
Data support the use of chemotherapy in a number of advanced disease settings, even many solid tumors. Yes, chemotherapy can and should be part of good palliation in many settings. There are significant symptom benefits, QOL improvements, and survival benefits to be had in cases of lung, breast, colon, and prostate cancer; many other solid tumors respond to chemotherapy as well. Of course, the devil is in the details. An emerging quality indicator in oncology practice is the proportion of patients receiving chemotherapy in the last 2 weeks of life. Too many patients are receiving chemo just before death.
Here’s the conundrum: we know chemotherapy can be beneficial, but only in certain settings. Unfortunately we’re not very good at predicting how well a particular patient will tolerate treatment, nor how well their tumor(s) will respond. How should we proceed?
The SIG speakers recommend following a framework: First, look to published guidelines like those from the NCCN, which tell us when chemotherapy is no longer recommended (link). If treatment is pursued, it must be done with full informed consent regarding its palliative intent. Treatment must be viewed as a time-limited trial, with specific criteria for measuring response and planned discontinuation if none is seen. Transitions to hospice should be discussed early, at the first signs of decline in function. And the palliative care team should be involved! As Dr. Smith pointed out, recent data on early palliative care in advanced lung cancer shows a resultant reduction in chemotherapy usage in the last 60 days of life. We still don’t really know how this works, but it works, and it doesn’t impair survival.
Going forward, palliative care will become more integrated into comprehensive cancer care, as per recent recommendations (link). This requires palliative care clinicians to better understand the role of chemotherapy as part of good palliative care for many cancer patients. Let’s be constructive, and increasingly work side-by-side with our oncology colleagues in caring for patients with incurable cancer. Hug an oncologist today!
Model for Running a Palliative Care Interdisciplinary Team Case Conference
Mar 9th
Our palliative care interdisciplinary team (IDT) meets every morning, and reviews nearly all the patients on the inpatient service, new patients seen in the outpatient clinic, outpatients in need of active management of some aspect of their care (typically pain medication), and patients under our care who have died. It’s a unique and comprehensive meeting that gives us the opportunity to hear about each of our patients from the beginning of our interactions with them, making transitions between providers and location of care much easier than what I am accustomed to. I haven’t seen other IDTs in action so I was curious to see how other programs do it. As it turns out, the Mt Sinai team presented a model not just for an IDT meeting, but specifically how they do their weekly case conference.
They have developed a highly structured model for presenting a pre-selected case to their interdisciplinary team, called “Bring it to the table” (BITTT), referring to the goal of presenting cases that bring a need for help with a tricky management issue, interpersonal dynamic, or with learning potential. Under their old system, they found that the medical side tended to dominate the discussion, and part of the motivation for revamping their conference was to encourage greater participation by the non-medical members of the team. To that end, the facilitator for their conference is typically their chaplain. There are time limits placed on each section of the conference, with time for the clinical case presentation, clarifying questions from the group, and group discussion. This has improved attendance and participation in their conference, and particularly participation by the non-medical members of the team as there is time dedicated for them to ask questions. The time limits imposed also allow for two case presentations weekly, one by each consult team.
As part of the structure of their conference, the facilitator asks the presenting team: “You bring this case to the table because…” with the team filling in their reasoning. I loved this question, because it does force the presenter to be thoughtful and focused on what they are hoping to accomplish with their presentation. This was a very common theme when I was a chief resident and helping residents to prepare for their M&M presentations, when they often chose cases that were extremely complex past the scope of what could be presented in an hour, and needed to identify what specifically they were trying to communicate to the audience. This skill of identifying your teaching (or learning) objective is not intuitive to all learners and educators and I think is really critical for those of us entering the world of clinical education. I love the explicit emphasis placed on it by the Mt Sinai team. My team does some case presentations in our weekly palliative care conference, and while I think the strict structure of the BITTT model does have some drawbacks, it’s worth considering for us as our section grows and the potential for conference chaos increases.
Does your program have a regularly scheduled case conference? How does it work?
Meredith MacMartin, MD, HPM Fellow at Dartmouth-Hitchcock Medical Center


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