Resources

Other Useful Resources

There is a wealth of information available for people living with serious illness as well as for their caregivers and loved ones. Following are some websites you may wish to visit.

Palliative, Hospice and End-of-Life Care:

• Americans for the Better Care of the Dying
• American Hospice Foundation
• Before I Die: Medical Care and Personal Choices
• Caring Connections, the National Hospice and Palliative Medicine Organization's patient website
• GetPalliativeCare.org, The Center to Advance Palliative Care's patient website
• Children's Hospice and Palliative Care Coalition
• Compassion & Choice
• Death with Dignity National Center
• DyingWell.org
• Growthouse.org: Improving Care for the Dying
• Hospice and Palliative Nurses Association
• Hospice Foundation of America
• On Our Own Terms: Moyers on Dying
• National Association for Home Care & Hospice
• The Social Work in Hospice and Palliative Care Network
• Virtual Hospice: Glossary of medical and legal terms in palliative care

Other Sites:

• American Geriatrics Society
• American Academy of Pediatrics
• CareRunner, provides online tools, information and support to more easily manage the care of loved ones
• Caring Bridge, connecting families and friends of seriously ill people
• Family Caregiver Alliance
• FamilyDoctor.org, the patient website of the American Academy of Family Physicians
• Partnership for Parents Web, a support network for parents of seriously ill children
• Share the Care: How to Organize A Group to Care for Someone Who is Seriously Ill 
• Canadian Virtual Hospice

Books
There are many, many books written about palliative care, dying and grieving. For an extensive list of some of these books, visit DyingWell.org or visit your library or a bookstore.

The National Institute on Aging has produced a comprehensive 68-page booklet, entitled "End-of-Life: Helping With Comfort and Care." This free booklet was created to help people make sound health care decisions and get the care they would want for themselves or their family members. Obtain up to 10 free copies or call 800.222.2225.

Articles
With permission of the publisher, Mary Ann Liebert, Inc., we have compiled articles written by physicians, nurses, pharmacists and other health care provides that were originally published in the Journal of Palliative Medicine. 

View articles.