PC-FACS
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February 19
Tracheostomy mechanical ventilation in patients with amyotrophic lateral sclerosis: clinical features and survival analysis. |
Spataro R, Bono V, Marchese S, La Bella V. |
Tracheostomy Mechanical Ventilation for Patients with ALS Background: In western countries, fewer than 11% of patients with amyotrophic lateral sclerosis (ALS) undergo tracheostomy.1-3 Does tracheost... |
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Spinal muscular atrophy type 1: are proactive respiratory interventions associated with longer survival? |
Lemoine TJ, Swoboda KJ, Bratton SL, Holubkov R, Mundorff M, Srivastava R. |
Proactive Non-Invasive Respiratory Care for Pediatric Spinal Muscular Atrophy Background: A genetic motor neuron disease, spinal muscular atrophy (SMA) causes significant disa... |
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Variability of judgments of capacity: experience of capacity evaluators in a study of research consent capacity. |
Kim SY, Appelbaum PS, Kim HM, Wall IF, Bourgeois JA, Frankel B, et al. |
Judging Capacity to Consent to Research Background: Studies have reported disagreement between evaluations of patients' capacities to provide informed consent to research.1-3 What sources introduce p... |
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Allowing adolescents and young adults to plan their end-of-life care. |
Wiener L, Zadeh S, Battles H, et al. |
Allowing Adolescents and Young Adults to Plan Their End-of-Life Care Background: Prevalence of potentially life-threatening illness (LTI) in youth is increasing.1 How do seriously ill adolescents an... |
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Views of adolescents and parents on pediatric research without the potential for clinical benefit. |
Wendler D, Abdoler E, Wiener L, Grady C. |
Adolescent/Parental Views on Pediatric Research Without Clinical Benefit Background: Ethical controversy surrounds enrollment of children in studies that offer no potential clinical benefit, but may... |
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Patient, caregiver, health professional and researcher views and experiences of participating in research at the end of life: a critical interpretive synthesis of the literature. |
Gysels MH, Evans C, Higginson IJ. |
Attitudes Toward Participating in Research at the End of Life Background: Systematic reviews examining attitudes toward research participation at the end of life (EOL) have focused on cancer patients... |
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